Parents of SMA-affected kids in Keralam seek political support for their concerns over generic drug

Image for representational purpose only.

Parents of children suffering from Spinal Muscular Atrophy (SMA), a serious genetic disorder, in Keralam are trying to get political support for their opposition to the State government’s decision to replace the life-saving medication being administered to their kids with a generic drug.

A section of them recently met Opposition leader Pinarayi Vijayan and Industries Minister P.K. Kunhalikutty. Mr. Vijayan also wrote to Health Minister K. Muraleedharan, urging him to address the concerns related to the efficacy of the new medicine. Mr. Vijayan, in the letter, sought to reconsider the decision to cut the ₹30 crore sanctioned during the previous government’s tenure for the free drug distribution scheme for those aged up to 12 till they turn 25.

Risdiplam, a life-saving drug